Dear Susan,
Enclosed is a $450 donation to your foundation. This money was raised through the sales of With Every Breath: Stories by and about people living with cystic fibrosis. All proceeds from this book, sold on Amazon, have gone to cystic fibrosis. I chose to support your foundation because as a cystic fibrosis patient myself, I see a need in the CF community for direct support reaching beyond just research. I believe in your mission and feel that your programs are making a positive impact on people with CF. Thank you for all you are doing to help those facing this disease!
Regards,
Katherine Russell
RussellK@cs.com
Kathy is a board member of the CF Roundtable (United States Adult Cystic Fibrosis Association, Inc.) http://cfroundtable.com
Showing posts with label Special Recognition. Show all posts
Showing posts with label Special Recognition. Show all posts
Monday, October 13, 2008
Tuesday, October 7, 2008
Claire Tinsley teaches 3rd graders about CF
“We’re having a fundraiser at Walker, and I want the proceeds to benefit CF somehow.” Those were the words of my next-door neighbor, Kerry Morris, a 3rd grade teacher at The Walker School in Marietta – words every CF parent likes to hear! Kerry wanted to the funds to be used locally, and so I contacted Amy Shipp, the Social Worker at Children’s Hospital at Scottish Rite, for ideas. She recommended the Reaching Out Foundation, and cited its many instances of financial help given to CF families in need. I was easily persuaded.
Kerry also asked if my daughter, Claire Tinsley, could speak to the third-grade class before the bake sale fundraiser; she felt it might get them more enthused if they had a face that they could connect to Cystic Fibrosis. Claire was diagnosed at birth, and so has lived with CF for almost 15 years; it is not difficult for her to talk about what her “normal” life is like.
On Thursday, September 11, 2008, I checked Claire out of Harrison High School early and drove to the Walker campus, carrying Claire’s vest machine, her inhalers, and a plastic baggie filled with the myriad pills she takes in one day. At the library where the kids were politely seated, we plugged in the vest machine, and Claire introduced herself, telling the students about the basics of CF - she then asked for a volunteer to try out the vest. Claire chose a boy who was closer to her size than many of the other 9 and 10 year-olds and strapped the vest onto his chest. She programmed the frequency and pressure (not too high!), and turned it on. He immediately began laughing, as did all the children, and they got their first lesson in airway clearance!
She spoke briefly about her symptoms, her daily routine and her feelings of being a normal kid with just a slightly different lifestyle. She then opened the floor to questions and boy, did they have questions!
Q. “Do the pills taste bad?” A. No, except sometimes the antibiotic pills are big, and they taste bad if I don’t swallow them quickly.
Q. “Are there any activities you can’t do?” A. I can pretty much do anything, except I’m not supposed to scuba dive, or go to a very high altitude, except when I’m in a pressurized airplane.
Q. “Can you go trick-or-treating?” (He was worried because she told them she does her treatments at night, and that they take a long time). A. “I never miss it!”
Kerry gently closed the floor to questions and the kids gave Claire a round of applause. The next week, she received a stack of thank you notes written in neat, cursive handwriting; one little girl wrote, “I love you. I want you to be my babysitter.” I don’t think Claire could receive any greater compliment.
The Walker School fundraiser netted around $900, and we couldn’t be happier to see that donated to the Reaching Out Foundation.
KATHRYN TUCKER
Kerry also asked if my daughter, Claire Tinsley, could speak to the third-grade class before the bake sale fundraiser; she felt it might get them more enthused if they had a face that they could connect to Cystic Fibrosis. Claire was diagnosed at birth, and so has lived with CF for almost 15 years; it is not difficult for her to talk about what her “normal” life is like.
On Thursday, September 11, 2008, I checked Claire out of Harrison High School early and drove to the Walker campus, carrying Claire’s vest machine, her inhalers, and a plastic baggie filled with the myriad pills she takes in one day. At the library where the kids were politely seated, we plugged in the vest machine, and Claire introduced herself, telling the students about the basics of CF - she then asked for a volunteer to try out the vest. Claire chose a boy who was closer to her size than many of the other 9 and 10 year-olds and strapped the vest onto his chest. She programmed the frequency and pressure (not too high!), and turned it on. He immediately began laughing, as did all the children, and they got their first lesson in airway clearance!
She spoke briefly about her symptoms, her daily routine and her feelings of being a normal kid with just a slightly different lifestyle. She then opened the floor to questions and boy, did they have questions!
Q. “Do the pills taste bad?” A. No, except sometimes the antibiotic pills are big, and they taste bad if I don’t swallow them quickly.
Q. “Are there any activities you can’t do?” A. I can pretty much do anything, except I’m not supposed to scuba dive, or go to a very high altitude, except when I’m in a pressurized airplane.
Q. “Can you go trick-or-treating?” (He was worried because she told them she does her treatments at night, and that they take a long time). A. “I never miss it!”
Kerry gently closed the floor to questions and the kids gave Claire a round of applause. The next week, she received a stack of thank you notes written in neat, cursive handwriting; one little girl wrote, “I love you. I want you to be my babysitter.” I don’t think Claire could receive any greater compliment.
The Walker School fundraiser netted around $900, and we couldn’t be happier to see that donated to the Reaching Out Foundation.
KATHRYN TUCKER
Wednesday, September 10, 2008
Special Milestones
Eighth Anniversary of Susan Burroughs’ new lungs,
her 48th birthday
and her 20th wedding anniversary!!
Donald Cross’ 36th birthday
Honoring Susan for her courage and ongoing gift to others
her 48th birthday
and her 20th wedding anniversary!!
Donald Cross’ 36th birthday
Honoring Susan for her courage and ongoing gift to others
Patricia "Pat" Tatro
Farewell
Dear CF Patients and Families,
It has been a great privilege and honor to serve as your social worker in the CF clinic for the past 13 years. In the reorganization that is occurring at the Emory CF Center my position will no longer be funded. It is with sadness that I must say good-bye to you.
My wish for each and every one of you is:
1. Take care of yourself
2. Do your treatments as your doctors prescribe
3. Come to clinic.
I want you to be well so you can realize all of your hopes and dreams.
Love, Pat
In Loving Memory of Heather Skillings Higginbotham
A generous contribution has been made by Heather’s family;
Her parents Babs and Shaw and Husband Jerry, to the
Cystic Fibrosis – Reaching Out Foundation.
The purpose of the donation is to assist other CF patients and families through Reaching Out’s programs.
Our Sincere Thank You,
Reaching Out
Heather with her “baby”, Toby
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