Susan's Transplant Video is on You Tube

Susan Burroughs, the Founder of Cystic Fibrosis-Reaching Out Foundation has now put her transplant video on You Tube. To see the video please go to http://www.youtube.com/ and search "Susan Burroughs".

Thursday, April 30, 2009

Swine Flu

Swine Flu and Cystic Fibrosis
What is influenza?
What is swine flu?
What are the signs and symptoms of swine flu in people?
How does swine flu spread?
Can I get swine flu from eating pork?
Can I get swine flu from taking pancreatic enzymes?
How can I avoid swine flu and other germs?
What should I do if I think I or my child has the flu?
My doctor has prescribed Tamiflu®, but I can’t get it locally. What can I do?
Is the CF Foundation monitoring the swine flu outbreak?
What is influenza?
Influenza (the flu) is an illness caused by a virus. It usually happens in the fall and winter but people can get the flu at other times of the year. The flu is easily spread by direct contact, coughing, sneezing, and when an infected person touches a surface that others then use, like doorknobs and railings. Read this fact sheet to learn more about the flu and ways to avoid getting it.
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What is swine flu?
Swine Influenza (swine flu) is a respiratory disease of pigs caused by type A influenza viruses, which can cause regular outbreaks in pigs. People do not normally get swine flu, but human infections can and do happen. Like seasonal flu, swine flu may cause a worsening of chronic medical conditions, like CF.
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What are the signs and symptoms of swine flu in people?
The symptoms of swine flu in people are similar to the symptoms of regular human flu and include:
fever and chills,
cough,
sore throat,
body aches, headache and
fatigue.
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How does swine flu spread?
Spread of the swine influenza A (H1N1) virus is thought to be happening in the same way that seasonal flu spreads. Flu viruses are spread mainly from person to person when someone with influenza coughs or sneezes. Sometimes a person may become infected with the flu by touching something that has flu viruses on it and then touching their mouth or nose.
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Can I get swine flu from eating pork?
No. Swine influenza viruses are not transmitted by food. You can not get swine flu from eating pork or pork products. Eating properly handled and cooked pork and pork products is safe. Cooking pork to an internal temperature of 160°F kills the swine flu virus as it does other bacteria and viruses.
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Can I get swine flu from taking pancreatic enzymes?
No, you cannot get swine flu from pancreatic enzymes. The virus that causes swine flu is destroyed in the manufacturing process used to make enzymes.
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How can I avoid swine flu and other germs?
There are everyday actions people can take to stay healthy.
Clean your hands with alcohol-based hand gel or soap and water.
Use a tissue when coughing or sneezing, throw it away, then clean your hands.
Keep at least three feet away from others who appear ill or are coughing.
Avoid touching your eyes, nose or mouth since germs spread that way.
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What should I do if I think I or my child has the flu?
If you or your child has CF and you think you or they may also have the flu, call your doctor. If you get sick, Centers for Disease Control and Prevention (CDC) recommends that you stay home from work or school and limit contact with others to keep from infecting them. If you have swine flu your doctor may prescribe an antiviral drug like Tamiflu® that can modify the severity of your illness.
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My doctor has prescribed Tamiflu®, but I can’t get it locally. What can I do?
CF Services Pharmacy, Inc. has Tamiflu® available for people with CF. You can contact CF Services at (800) 541-4959.
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Is the CF Foundation monitoring the swine flu outbreak?
The Foundation is closely monitoring the evolving swine flu outbreak and will update this site with more information and recommendations as needed.
You can learn more about the swine flu and how to avoid germs from:
The CDC Web site,
The Foundation’s Influenza fact sheet and Respiratory: What You Should Know About Germs, and
Watching the Web cast How to Avoid Germs in CF.
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SWINE FLU

No cases of swine flu have been reported in Georgia as of 4/27/09.

At Children’s Healthcare of Atlanta, we are following the Centers for Disease Control and Prevention (CDC) recommendations for monitoring our patients. You may see more patients and staff members wearing masks as an extra precaution during your visit.

Below are some frequently asked questions about swine flu. Please ask a Children’s clinician or visit www.cdc.gov/swineflu for more information.

What is swine flu?
Swine flu is a respiratory disease of pigs caused by a type of flu virus. People do not normally get swine flu, but human infections can happen. The influenza is spread by coughing, sneezing and unclean hands.

What can you do to protect yourself?
Limit family members and friends joining you during your visit to the hospital or neighborhood location.
Tell a Children’s staff member if you have visited Mexico or have had contact with a Mexico traveler in the last seven days.
If you or your child has a fever and cough or sore throat, wear a mask-available at the desk or from your nurse.
If you are not in the hospital, cover your nose and mouth with a tissue when you cough or sneeze.
Clean your hands after coughing or sneezing. Wash with soap and water, or use alcohol-based hand cleaner.
Avoid touching your eyes, nose and mouth.

What are the symptoms of swine flu in humans?The symptoms of swine flu in people are similar to the symptoms of seasonal flu and include fever, lethargy, lack of appetite and coughing. Some people with swine flu also have reported runny nose, sore throat, nausea, vomiting and diarrhea.

Is the swine flu treatable?
There is no vaccine to protect humans against swine flu. There are two antiviral drugs that may be used for the treatment of swine flu: Oseltamivir and Zanamivir.

Is it safe to cook and eat pork and pork products?
Yes. It is safe to eat properly handled and cooked pork and pork products. Swine flu viruses are not spread by food. You cannot get swine flu from eating pork or pork products.

Monday, April 27, 2009

Susan Burroughs Wins Inspire Award


At the ING Marathon in Atlanta, team 65 Roses surprised me with the Inspiration Award. What an honor! The trophy says: "


Miles for Cystic Fibrosis Inspire Award 2009
Presented to:
Susan Burroughs
Founder of the Cystic Fibrosis-Reaching Out Foundation
Courageous, Long-Term Lung Transplant Survivor
Champion of People with Cystic Fibrosis
Atlanta, Georgia
March 27, 2009