Susan's Transplant Video is on You Tube

Susan Burroughs, the Founder of Cystic Fibrosis-Reaching Out Foundation has now put her transplant video on You Tube. To see the video please go to and search "Susan Burroughs".

Wednesday, August 26, 2009

Lungs 4 Joseph

Joseph is waiting for his new lungs. Check out his blog spot and also help him raise the money he needs for the transplant.

Wednesday, August 19, 2009

New Resource added to

1. The Power of Two: A Twin Triumph over Cystic Fibrosis (added: 19-Aug-2009)
Book Summary
The tragedy of cystic fibrosis has been touchingly recounted
before, but this is the first book to portray the symbiotic
relationship between twins who share this life-threatening
disease through adulthood. Isabel Stenzel Byrnes and Anabel
Stenzel tell of their struggle to pursue normal lives while
grappling with the realization that they might die young.
Their story reflects the physical and emotional challenges
of a particularly aggressive form of CF and tells how the
twins bicultural heritage Japanese and German influenced the
way they coped. The Power of Two is an honest and gripping
portrayal of day-to-day health care, the impact of chronic
illness on marriage and family, and the importance of a
support network to continuing survival. These two remarkable
sisters have much to teach about the power of perseverance
and about the ultimate power of hope.

New Resource added to

1. Foundation Care (added: 19-Aug-2009)
Full Service Pharmacy
You may qualify for FREE Hypertonic Saline and Vitamins..
call 877-291-1122