Susan's Transplant Video is on You Tube

Susan Burroughs, the Founder of Cystic Fibrosis-Reaching Out Foundation has now put her transplant video on You Tube. To see the video please go to and search "Susan Burroughs".

Wednesday, October 8, 2008

CF Research: Progress, Hope and Challenges Today

Wednesday, November 12th 8 p.m. ET(7 p.m. Central, 6 p.m. Mountain and 5 p.m. Pacific)

Please help us spread the word about the Virtual CF Education Day Web cast on Wednesday, November 12th. You will learn the latest in CF research that was presented at the 22nd Annual North American CF Conference. Dr. Preston Campbell, Executive Vice President of the CF Foundation, will give an update about Vertex 770 and 809, Denufosol, and other potential therapies for CF. He will be joined by Dr. Robert J. Beall, CEO of the CF Foundation, to help answer questions asked by Barbara Allen, an adult with CF, and Laura Homassel, a parent of a child with CF. We’ll share the latest news, and tell you how you can get involved!Pre‐registration begins October 13th on the CF Foundation’s Web site, or Please use code PT651 when you pre‐register. (You may submit questions atthe time of registration.) Questions also may be submitted during the live broadcast. To view this Web cast, your computer must have Microsoft Media Player, version 9.0 or higher. For freeMicrosoft Media Player go to: Log in about 10 minutes before the presentation (check your time zone!) by going tothe CF Foundation Web site ( or, and click on the “Virtual CF Education Days” icon.* The screen will remain blank until the program begins. Participation will belimited to the first 1,000 people online.*It is recommended that you verify the ability to view the Web cast by watching an archived Virtual CF Education Day Web cast. You can find these archived Web casts on the CF Foundation’s Web site, or If you can’t join the live Web cast, the program will be archived on the CF Foundation’s Web site ( Virtual CF Education Day Live Web cast is made possible by an unrestricted educational grant from Genentech, Inc.

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